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National Hospice and Palliative Care Organization;
Many people with disabilities are living longer now with more modern and technological advances in health care, and need different kinds of care and support, particularly at the end of life. In addition, trends show that parents and caregivers of those with disabilities are not outliving their children as they historically did in most cases. With the changing trends, hospice providers need to be ready for to care for people with disabilities and their families as well as a child or adult with a disability whose parent is under their care.
Honoring Emancipated Youth (HEY);
Foster youth and emancipated foster youth experience disproportionally high mental health and physical health needs, compared to youth who have never been in the system. Youth who have physical or mental disabilities, have experienced trauma, or have other health problems are more likely to enter the foster care system, more likely to develop health problems in care and more likely to experience health problems after emancipation.
Open Society Institute;
Calls for safeguards to prevent forced sterilization of women and girls with disabilities, a practice justified in many countries as being in their best interests despite the fact it violates international human rights standards.
Women's Refugee Commission (formerly Women's Commission for Refugee Women and Children);
Around the world, an estimated 3.5 million displaced people live with disabilities in refugee camps and urban slum settlements. The Women's Commission for Refugee Women and Children, with the support of the United Nations High Commissioner for Refugees, undertook a six-month research project to assess the situation of those with disabilities among refugee and conflict-affected populations. Using our field research in five countries, Ecuador, Jordan, Nepal, Thailand and Yemen, the Women's Commission sought to map existing services for displaced persons with disabilities, identify gaps and good practices and make concrete recommendations on how to improve services, protection and participation for displaced persons with disabilities.
- Refugees with disabilities are among the most hidden, neglected and socially excluded of all displaced people in the world.
- They are excluded from or unable to access mainstream assistance programs as a result of attitudinal, physical and social barriers and are forgotten in the establishment of specialized and targeted services.
- Refugees with disabilities are more isolated following their displacement than they were in their home communities and their potential to contribute and participate is seldom recognized.
One-quarter of workers ages 51 to 55 develop work disabilities before age 62. Disabilities often force people to curtail their work hours, derailing retirement preparations. However, protections built into Social Security, including disability and spouse benefits and the system's tilt toward workers with low lifetime earnings, cushion the impact of midlife health problems. After other factors are controlled for, the onset of health-related work limitations between ages 51 and 61 reduces Social Security retirement benefits at ages 63 to 67 by only about 2 percent, much less than the impact on other retirement savings.
Public Policy Institute of California;
Provides an overview of the state's special education programs, including eligibility, enrollment, student performance, time spent outside regular classrooms, spending, and financing, compared to national trends. Considers policy implications.
Grantmakers for Children, Youth, and Families;
This issue of Making the Link will touch on some of the reasons why grandparents become primary caregivers for their grandchildren, the joys and challenges associated with raising grandchildren and support services currently in place to assist "grandfamilies" emotionally, financially and legally. We will also discuss ways funders can help reduce the gaps in these services and provide other forms of support for grandparents raising their grandchildren.
Help the Hospices, Commission into the Future of Hospice Care;
This publication represents an important step towards greater partnership by sharing some of the thinking, good practice and resources that have been developed throughout learning disability and end of life care services in a form that will be accessible to all practitioners but especially those in a hospice setting. It includes sections on the definition and incidence of learning disability, healthcare for people with learning disability, as well as a glossary and an extensive section on resources.
New research studies conducted by Special Olympics found disturbing evidence that individuals with intellectual disabilities face widespread health problems, while physicians, dentists and other health professionals are not receiving adequate training in order to treat them. The research reinforces previous studies that found that despite the widespread belief that individuals with intellectual disabilities receive better health care than the rest of the population, people with intellectual disabilities actually have poorer health, more specialized ealth care needs and greater difficulty accessing health care services and doctors compared to the general public.
Research Methodology: Special Olympics recently commissioned two research studies related to the health and health care of individuals with intellectual disabilities.
This study represents a first attempt to provide a nationwide overview of welfare-to-work policies for individuals with disabilities and caregivers. The major findings of this report are: (c) The majority of states have changed their work participation policies to require participation among some individuals with disabilities and caregivers who were previously exempt. (c) States are in the early stages of making decisions about who should be required to participate in welfare-to-work services, who should be expected to move off welfare within 60 months, and what services will best help recipients achieve this objective.
John J. Heldrich Center for Workforce Development;
Summarizes the results of a December 2004 summit on connecting people with disabilities to the workforce.
This summit examined the barriers to work that continue to exist for people with disabilities, as well as what supports and services are most critical to helping people with developmental and other disabilities enter and succeed in the workplace. Participants identified the four key stakeholders critical to people with disabilities (particularly severe disabilities) finding and keeping a job: jobseekers themselves, their family/caregivers, employers, and service providers/disability agencies. Each stakeholder plays a unique role in facilitating -- or hindering -- the employment of people with disabilities.
John J. Heldrich Center for Workforce Development;
The intent of this study is to identify state policies and procedures that are designed to ensure
that people with disabilities and/or parents with children with disabilities are provided the
opportunity to participate in state TANF programs. The intent is not to present "best practices," with quantifiable and measurable outcomes. Many state TANF programs are still in their early stages, with new programs being developed and outcomes still uncertain. The intent is to present an in-depth "snapshot" of what is occurring right now at the state level in terms of services and programs designed to assist TANF recipients with disabilities. Are states developing programs and policies specifically targeted toward people with disabilities? Are people with disabilities being served on an individual basis as part of the overall TANF population? Are states developing innovative strategies that particularly benefit TANF recipients with disabilities and, if so, what are they? By identifying these strategies, this report may assist other states in their policy development process in support of people with disabilities and parents with children of disabilities.